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DAISY (DAta Information SYstem) is an open-source web application that helps biomedical research institutions maintain a register of personal data in accordance with GDPR requirements.

DAISY was built around the GDPR accountability principle — the obligation to not only comply with data protection rules, but to actively demonstrate that compliance. It covers transparency and record-keeping obligations across all GDPR principles, and supports the complex data flows typical of biomedical research.

DAISY is actively used at the Luxembourg Centre for Systems Biomedicine (LCSB) and the ELIXIR-Luxembourg data hub. A live demo deployment is publicly available.

What you can do with DAISY

Module	Purpose
Projects	Record research activities and their legal and ethical basis for data use
Datasets	Document personal data held by the institution, including granular data declarations
Contracts	Store legal agreements with partners — data sharing, consortium, material transfer
Definitions	Manage shared reference entities: cohorts, partner institutes, and contacts

License

DAISY is licensed under GNU Affero General Public License v3.0 (AGPL 3.0).

DAISY development is undertaken by ELIXIR-Luxembourg.

Citation

When using or referring to DAISY, please cite:

DAISY: A Data Information System for accountability under the General Data Protection Regulation. GigaScience, Volume 8, Issue 12, December 2019, giz140.